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| Title: | More hands in complex ART delivery? Experiences from the expert clients initiative in rural Uganda |
| Author: | Kyakuwa, Margaret |
| Year: | 2009 |
| Periodical: | African Sociological Review |
| Volume: | 13 |
| Issue: | 1 |
| Pages: | 143-167 |
| Language: | English |
| Geographic term: | Uganda |
| Subjects: | AIDS health care patients |
| External link: | https://www.jstor.org/stable/afrisocirevi.13.1.143 |
| Abstract: | This paper analytically describes the experiences and outcomes of involving people living with HIV/AIDS in clinical care of HIV/AIDS within the health care clinic in a poorly resourced setting. With HIV/AIDS treatment finally available in poorly resourced settings, there was a huge number of people in need of clinical care. As a result, professional health workers became overwhelmed by the demand for treatment and care. Consequently, this called for a new way to handle the rising numbers and needs of clients at the health clinic level so as to minimize the burden of care on the health professionals. An 18-months ethnographic study was conducted between 2005 and 2007 with professional medical workers (including doctors, nurses and counsellors, clinicians), ART (antiretroviral treatment) clients and family care givers of ART clients, at a health centre IV-HIV clinic in a rural district in Uganda. The results show that the scaling up of ART and the subsequent introduction of 'Expert Clients' as a new care arrangement within the health clinic has opened up the clinical space as some pseudo space where, at least in principle, the patient has a voice in care with various outcomes. Bibliogr., sum. [Journal abstract] |
